The Struggle Continues………..


 

Went for a Follow-up visit to my G.P. My doctor found my pulse and blood pressure to be normal. Gained some much needed weight. Received my Flu Shot. Made appointments with the ENT specialist and gastro specialist. Will see the ENT today to find out the cause of the clicking and popping noises in my right ear. As for the gastro he is booked until November. So must wait until then. All in all a good doctor visit. Doctor also says much of my joint pain will subside once I retire. Prolonged standing, in my case 8 to 12 hours a day is not good for anyone.

One thing I wanted to add especially for my new Followers/Subscribers is that I had a mini-stroke while at my job Nov. 2008. I was lucky in the sense that I had the stroke at work because I live alone and if I had the stroke at home I would have been dead. Unlucky in that job-related stress can either disable or kill you. Since 2008 I have had Retina Surgery and been rushed to the hospital several times for various ailments.  So far 2016 has been a good year for me just because no hospital visits or stays. However I must admit to myself I am getting older and with age come health issues.

Group Home Update

I spoke with the director of my brother Stephen’s Residence yesterday. He will conduct an inventory of his clothing and email it to me. For those of you who wonder why I don’t go there in person the reason being that I can no longer drive. That stroke I previously mentioned took much of the vision in my left eye. Stephen’s residence is not accessible either by subway or bus. The nearest bus stop is probably a mile away from the Group Home. I do not have anyone to drive me nor do I have the money or funds to hire a taxi to take me there.

Call Out

I notice from my last post about my troubles with the staff at Stephen’s group home that most of the comments were about what I should be doing. Who I should be calling, etc… Now if I could or had the power to do any of these things I would be doing them. I suppose those of you who commented meant well but put yourself in my place. I’m Alone. I have NO Support System. ALL my immediate family are DEAD!!  There are no programs/services available to full-time working Siblings that could help me.

For those of you who commented Put yourself in my place. Imagine ALL your family were deceased and I mean ALL. On top of that imagine working a low-paying job where you are barely making ends meet and your employer frowned on family leave. It is very difficult or nearly impossible for me to get time off for either Stephen or myself.  As much as I Love my brother there are things that I cannot do anymore. I need someone right here, right now, physically available who can help me. See below NY Times Article.

The New York Times did an article on my brother Stephen and me. Please take time to read this eye opening article of our lives. Thank you.
http://nyti.ms/1BktTeP

 

Between 2008 and early 2014 I actually had to go to the local Food Pantries in my neighborhood in order to eat. I’ve had to apply for government assistance even though I work hours and hours of overtime just trying to meet my needs.  In 2014 my finances got a little better for a very short period of time. I was able to eat better and actually buy some winter clothes that kept me warm. New York City has brutal winters.  Finally this year I declared Bankruptcy. Yes my finances are that bad.

As for my join pain, gastro problems and arthritis I won’t go into the lurid, nasty disgusting details but I don’t have any more sick leave because I’m always sick. There are days when I can’t get out of bed or function. There is nobody for me to call on for help. All my vacations are Staycations because I can’t afford to go anywhere and the money I do have is spent on doctors and searching for ways to alleviate chronic pain. Plus I’m tired No Not Just tired but physically, mentally and emotionally exhausted.

Those of you who talk about my capabilities/abilities or whatever trust me I have none otherwise none of these bad things would be happening.

Of course many times when I really feel burdened I wish I had somebody to talk to but in reality that person does not exist. If they do exist please provide me with the money to get there.

My Life was not always this way. When I was younger I did not have these health problems.  For my Blog Newcomers I served my country in the military, the United States Army from Nov. 1977 – Nov. 1981, Please Don’t Thank me. I cannot eat or pay my rent with Thanks. Instead encourage Uncle Sam to be a better Uncle and provide more and better services to Women Veterans. I went to college and graduated with honors.

My downfall came partly from the economic crash the United States experienced from the time I got laid off from my good job Dec. 2006 right before Christmas and the rest from the steady decline of my health even though I never smoked, never did drugs, rarely drank and always did some moderate exercise.

It’s always easy to say what a person under extreme stress should or should not be doing but Keep in Mind You Know Neither their Story or Their Song.

Sometimes bad luck is irreversible.  Sadly in my case all the balls I’ve been trying to juggle have fallen on the floor and I can’t reach them.  All I can do is stand in wonder looking at them lying there and continue to wonder how I got to this point in Life.

 

 

 

 

 

 

Correlation


 

DeBorah and Little Lamb June 1959
DeBorah had a Little Lamb

 

Timing

The time space that happens when you’re either taking off your clothes and getting into the shower or coming out of the shower wrapped only in a towel and the exact moment that the United States Postal Service or the UPS Guy will ring your doorbell!!

Go Figure!!

 

Defiant DeBorah

The Struggle is Real…….


 

 

There is probably nothing that any of my followers/subscribers can do about this but I just wanted to let you know my struggles with my brother Stephen’s Group Home.

I’m on Working Staycation. Meaning I was off Saturday/Sunday to spend time with Stephen. Today I worked because I need the money. Tomorrow I have a scheduled Doctor’s appointment.  The Stay-cation part means I’m supposed to be resting, relaxing and taking some much need time for myself but as always my stress level and blood pressure shoots up to the stratosphere when I have to deal with dumb-ass Management or rather lack of management at Stephen’s Group Home.

Back in Feb/March I could have received FMLA from my job if the Director had agreed to fill out the papers. I took an extra week of vacation from my job just so I could speed up the process and hand deliver everything. They refused to complete the paperwork with some lame excuse and returned the FMLA forms to me like six weeks later.  No cooperation.

More Fiascoes

This past weekend I purchased numerous clothing items including a brand new backpack for my brother Stephen Palmer who resides at QCP Bellerose. I also took him to the barber for a haircut and shave. I would like to know why his socks, underwear, baseball caps, and T-shirts keep disappearing. Slippers vanish into thin air. Also how can the staff not see or notice his grooming needs or the fact that the other old backpack had holes and shredded. Exactly what are they doing with Stephen’s government clothing allowance. I don’t mind buying for Stephen but he should not be walking around looking like the rag pickers son. There needs to be more accountability with his money.
Today instead of receiving a reply to my concerns all I got was a phone call asking me when I would be home so I could sign some papers.  Called asshole back, asked why they did not give me the papers this past weekend while Stephen was with me. She stumbled and stuttered and then hung up on her fool ass!
Now Stephen had been with me all day Saturday and Sunday! Why didn’t his Residence put the paperwork into his raggedy backpack so I could look it over and then sign it. Apparently the Directors and Managers at QCP Bellerose only think of me as a Walking Pen. None of my concerns are addressed.  Time and time again I’ve made suggestions and recommendations that would improve Stephen’s education, creativity and life in general. Nothing but smarmy smiles.
Also I have a full-time job which usually involves working long hours with lots of overtime. How else would I be able to afford all the grooming and clothing Stephen needs plus the little extras unless I went to work?
I’m frustrated, disgusted and basically at my wits end with these morons, idiots and fools. Last Feb/March vacation I wound up in a extremely heated altercation which resulted in me cursing the House Manager out. And Believe me I can curse worse than any Sailor on earth. Then after that my demands were met. Just shows that you can’t be nice to people. Trying to reason with them does not work. I hate to get Ghetto Bitch Ugly but sometimes you gotta go there.
At this point I’m tired of being ignored.  I have No Resources. No Support System. Everything falls on my shoulders.  All the Time a Warrior!!
So instead of enjoying my vacation once again it’s time for me to put on my armor and get ready for battle!! Ugh!!  FUCK!!!!

Siblings Matter!!

The following song is raunchy but it expresses my true feelings about the Residence Staff!!

DMX – Party Up (Up In Here)

Together ~~ Super Siblings


 

https://dailypost.wordpress.com/prompts/together/#like-249665

Together

Had an fabulous fantastic weekend with my brother Stephen. Yesterday we both got hair cuts from Mel the Barber who is not only a great barber but a great guy. Stephen also received a shave from Mel, a small matter as Stephen only has a goatee and mustache.  
My brother Stephen has smooth skin and really does not have much facial hair.
Stephen enjoys sitting in the back yard just relaxing. We got in our exercise walk where I stopped by an excellent store where you can get many items for low prices. Purchased underwear, undershirts, socks and slippers for Stephen.
 
Prior to his home visit this weekend I had already gotten him a spiffy hat, some Spider-Man socks and a few other items.  I also spent money on Halloween costumes for both Stephen and me. So next month Stephen will either be Spider-Man or a Knight. The only thing I forgot was to buy him a belt but I will do it later on this week.
 
Today we went to one of our favorite places the Brooklyn Museum where we explored the various exhibits. They were setting up for a Wedding so some exhibits were closed however we still had an enjoyable time together.
 
Then back onto the subway and off to Franklin Avenue for more shopping. Stephen needed a new backpack and of course Big Sister was there to fulfill his needs. Since today was pretty hot we stopped for ice cream. Then back inside home where Stephen indulged his taste for horror movies!!
 
Stephen is the reason that I work overtime. My desire is to give him the best Life possible so I will endure the pain of standing for hours on end to ensure his happiness.
You may wonder or be asking yourself doesn’t Stephen get SSI (Social Security) and a clothing allowance?  The answer to your question is Yes Stephen does received Social Security and a clothing allotment allowance.  Why he comes to my house sometimes looking like the Rag Pickers son is beyond me, however I will be having a discussion with both the Director and Manager of his group home.  I do see that they buy him some shirts, pants (that usually don’t fit well) and sneakers but I know that they can do a better job.
Anytime you live in any institutional environment there will be some theft however I am not working hours and hours of pain inducing standing overtime to supply someone else with the clothing, bags and other items I buy for Stephen on a monthly basis.
When Stephen comes over for a home visit I give him my bedroom and I crash on the sofa downstairs.  He will watch movies on my Kindle Fire while I relax or prepare meals downstairs. Stephen always had a habit of looking for me and making sure that I was close by no matter where we were but in the last few years he will done the stairs just to sit by me on the sofa. He likes to be close to me.  The Love is there and it shows. Especially since it is only the two of us. All of our immediate family have died so we both treasure our time with each other.
The Most Important thing in my Life is for us to be Together! Super Siblings Forever!! An Amazing Sibling Team for Eternity!!

Stephen Vincent Palmer ~~ An Amazing Awesome Autism Guy!!

 

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