Defiant DeBorah

The Struggle is Real…….


 

 

There is probably nothing that any of my followers/subscribers can do about this but I just wanted to let you know my struggles with my brother Stephen’s Group Home.

I’m on Working Staycation. Meaning I was off Saturday/Sunday to spend time with Stephen. Today I worked because I need the money. Tomorrow I have a scheduled Doctor’s appointment.  The Stay-cation part means I’m supposed to be resting, relaxing and taking some much need time for myself but as always my stress level and blood pressure shoots up to the stratosphere when I have to deal with dumb-ass Management or rather lack of management at Stephen’s Group Home.

Back in Feb/March I could have received FMLA from my job if the Director had agreed to fill out the papers. I took an extra week of vacation from my job just so I could speed up the process and hand deliver everything. They refused to complete the paperwork with some lame excuse and returned the FMLA forms to me like six weeks later.  No cooperation.

More Fiascoes

This past weekend I purchased numerous clothing items including a brand new backpack for my brother Stephen Palmer who resides at QCP Bellerose. I also took him to the barber for a haircut and shave. I would like to know why his socks, underwear, baseball caps, and T-shirts keep disappearing. Slippers vanish into thin air. Also how can the staff not see or notice his grooming needs or the fact that the other old backpack had holes and shredded. Exactly what are they doing with Stephen’s government clothing allowance. I don’t mind buying for Stephen but he should not be walking around looking like the rag pickers son. There needs to be more accountability with his money.
Today instead of receiving a reply to my concerns all I got was a phone call asking me when I would be home so I could sign some papers.  Called asshole back, asked why they did not give me the papers this past weekend while Stephen was with me. She stumbled and stuttered and then hung up on her fool ass!
Now Stephen had been with me all day Saturday and Sunday! Why didn’t his Residence put the paperwork into his raggedy backpack so I could look it over and then sign it. Apparently the Directors and Managers at QCP Bellerose only think of me as a Walking Pen. None of my concerns are addressed.  Time and time again I’ve made suggestions and recommendations that would improve Stephen’s education, creativity and life in general. Nothing but smarmy smiles.
Also I have a full-time job which usually involves working long hours with lots of overtime. How else would I be able to afford all the grooming and clothing Stephen needs plus the little extras unless I went to work?
I’m frustrated, disgusted and basically at my wits end with these morons, idiots and fools. Last Feb/March vacation I wound up in a extremely heated altercation which resulted in me cursing the House Manager out. And Believe me I can curse worse than any Sailor on earth. Then after that my demands were met. Just shows that you can’t be nice to people. Trying to reason with them does not work. I hate to get Ghetto Bitch Ugly but sometimes you gotta go there.
At this point I’m tired of being ignored.  I have No Resources. No Support System. Everything falls on my shoulders.  All the Time a Warrior!!
So instead of enjoying my vacation once again it’s time for me to put on my armor and get ready for battle!! Ugh!!  FUCK!!!!

Siblings Matter!!

The following song is raunchy but it expresses my true feelings about the Residence Staff!!

DMX – Party Up (Up In Here)

Together ~~ Super Siblings


 

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Together

Had an fabulous fantastic weekend with my brother Stephen. Yesterday we both got hair cuts from Mel the Barber who is not only a great barber but a great guy. Stephen also received a shave from Mel, a small matter as Stephen only has a goatee and mustache.  
My brother Stephen has smooth skin and really does not have much facial hair.
Stephen enjoys sitting in the back yard just relaxing. We got in our exercise walk where I stopped by an excellent store where you can get many items for low prices. Purchased underwear, undershirts, socks and slippers for Stephen.
 
Prior to his home visit this weekend I had already gotten him a spiffy hat, some Spider-Man socks and a few other items.  I also spent money on Halloween costumes for both Stephen and me. So next month Stephen will either be Spider-Man or a Knight. The only thing I forgot was to buy him a belt but I will do it later on this week.
 
Today we went to one of our favorite places the Brooklyn Museum where we explored the various exhibits. They were setting up for a Wedding so some exhibits were closed however we still had an enjoyable time together.
 
Then back onto the subway and off to Franklin Avenue for more shopping. Stephen needed a new backpack and of course Big Sister was there to fulfill his needs. Since today was pretty hot we stopped for ice cream. Then back inside home where Stephen indulged his taste for horror movies!!
 
Stephen is the reason that I work overtime. My desire is to give him the best Life possible so I will endure the pain of standing for hours on end to ensure his happiness.
You may wonder or be asking yourself doesn’t Stephen get SSI (Social Security) and a clothing allowance?  The answer to your question is Yes Stephen does received Social Security and a clothing allotment allowance.  Why he comes to my house sometimes looking like the Rag Pickers son is beyond me, however I will be having a discussion with both the Director and Manager of his group home.  I do see that they buy him some shirts, pants (that usually don’t fit well) and sneakers but I know that they can do a better job.
Anytime you live in any institutional environment there will be some theft however I am not working hours and hours of pain inducing standing overtime to supply someone else with the clothing, bags and other items I buy for Stephen on a monthly basis.
When Stephen comes over for a home visit I give him my bedroom and I crash on the sofa downstairs.  He will watch movies on my Kindle Fire while I relax or prepare meals downstairs. Stephen always had a habit of looking for me and making sure that I was close by no matter where we were but in the last few years he will done the stairs just to sit by me on the sofa. He likes to be close to me.  The Love is there and it shows. Especially since it is only the two of us. All of our immediate family have died so we both treasure our time with each other.
The Most Important thing in my Life is for us to be Together! Super Siblings Forever!! An Amazing Sibling Team for Eternity!!

Stephen Vincent Palmer ~~ An Amazing Awesome Autism Guy!!

 

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Here and Now Memories with Luther Vandross


 

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Here and Now

Choose a moment and capture it in the medium of your choice.

Several Years ago this was a very popular Wedding Song.

 

 

Luther Vandross – Here and Now

 

StephenMe5_27_1972
Stephen, Me & part of Aunt Thelma

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Share Your World – 2016 Week 37


 

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Share Your World – 2016 Week 37

With your answers, please remember we are in the SYW world which may not always match our reality.

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http://www.democratandchronicle.com

Have you ever owned a rock, pet rock, or gem that is not jewelry?

Yes I did own a pet rock that was a fad back in the day. Thanks Cee for the Pet Rock photo!

We or rather my room-mate has done amazing things with rocks in our backyard garden.  Sorry for the poor quality of the photos.

What is your greatest strength or weakness?

Tenacity and Persistence.

What makes you feel grounded? 

Nature.

Would you rather never be able to eat warm food or never be able to eat cold food?

Since most food is served Hot, I’d rather never be able to eat cold food.

Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up? 

Grateful that I was able to help a very polite student have a better understanding of a specific painting last Friday.Fruitful conversations.

Looking forward to VACATION!!  HAPPY DANCE!!