Share Your World – July 17, 2017


 

Share Your World – July 17, 2017

Share Your World – July 17, 2017

share-your-world-syw

What is your favorite cheese?

I suppose Cheddar or American Cheese. I enjoy a great many types of cheese but as it contains high amounts of salt I must limit my intake. Bad for those of us with high blood pressure.

Are you left or right handed?

I am right handed. Stephen is left handed.

Do you prefer exercising your mind or your body? How frequently do you do either?

Both. I exercise my mind by watching educational videos on YouTube, reading and of course since I work in a museum viewing artworks on a daily basis.  Thanks to the NYC MTA and the poor bus and subway service I have the opportunity several times a week for unscheduled exercise after being let off the subway train 10+ blocks away from my intended destination.

Complete this sentence: Hot days are …THE BEST!!!! I LOVE Hot Weather. My skin, hair, nails and mood improve and brighten up. My hair grows faster and my skin does not suffer from those horrible winter rashes.  Summer is my Favorite Season!! I get more done and can spend more time outside in hot weather as opposed to cold weather.  Also I can wear my lovely summer dresses!

As long as the temps don’t go over 90 degrees.  100 degrees is not only uncomfortable but dangerous. I drink lots of water. Give me 70 and 85 degree days all year long! They are the best.

Optional Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

Making phone calls to my various elected officials to alert them to vote against trumpcare, keep Medicaid and improve services and programs for adults with Autism. By calling my various Congresspersons, Senators, Reps I hope to get funding restored for the programs and services eliminated due to budget cuts. Always wearing my Autism Advocate hat.  I am an Autism Activist!!

Also I had lots of fun at Curlfest on Sunday. Even though it was a really hot day in the park I spent lots of time dancing and having fun!

Looking forward to my vacation in August.

 

CELEBRATE SUMMER!!!

 

More Calls for Stephen


 

I did get a positive response from Rep.Tom Suozzi who represents Stephen’s district of Bellerose, Queens. Today I made a call to Congressman Gregory Meeks of Queens. Even though others may think my efforts are futile or may laugh at me I will continue to call as many elected officials as possible. I cannot give up on Stephen. I Love my brother Stephen and would do anything for him.

Restore the programs and services that have been eliminated from Stephens Group Home Residence and Training Center!! Hire more trained staff and No More Layoffs! No cuts to Medicaid! Everyone out there please call! Your Calls DO matter!! If we deluge Our Elected Officials with phone calls, email messages, texts and visits to their offices they must take notice!! No more apathy! Get Involved!!

I encouraged Rep. Tom Suozzi to visit Stephen’s Group Home Residence located at Bellerose, Queens. To Come see the wonderful work QCP does for developmentally disabled adults. Also visit AABR located in Jamaica, Queens which does an excellent job of educating and training adults with multiple disabilities. Plus to Bring as many Congresspersons, Senators and other Reps.  Perhaps if our Elected Officials see the faces of the people who will be affected and are affected by budget cuts and possible loss of Medicaid their minds can be swayed.

https://dancingpalmtrees.com/2017/07/12/im-calling-for-stephen-who-are-you-calling-for/

https://dancingpalmtrees.com/2017/07/14/still-calling-for-stephen/

 

Stephen is a Mighty Autism Warrior.  How about you?  Please let me know which elected officials you contacted in your area and their response. (This only applies to U.S.A. residents)

 

#AutismLivesMatter    #Autism

 

 

 

Still Calling for Stephen


 

 

Sent this message via Facebook to the Representative for Stephen’s district — Rep. Tom Suozzi.
 
Good Morning Rep. Suozzi. My brother Stephen Palmer resides in QCP Bellerose, Queens, NY. Stephen does not have conversational language nor can he read or write so I speak for him. Medicaid and SSI are what pay for Stephen to be in his Group Home Residence and to receive health care. Obviously I cannot pay for his health care when I’m barely able to take care of myself. Please Stand Up for those with Disabilities. Speak up for those who cannot speak for themselves!!
 
Due to budget cuts often when I call his Group Home Residence I find that there are not enough staff to care for the developmentally/intellectually disabled residents who live there. Gradually as time goes on more and more programs and services are being eliminated. Not only do you need more trained staff but these people need to make more money. Presently Fast Food Workers make more money than Direct Service Providers. This situation makes for high turnover or in some cases neglect.
 
I do not want to return to the warehousing of special needs people ie Willowbrook that took place during the 50s, 60s, & &70s. Funding for our most vulnerable populations needs to be increased not decreased.
PLEASE NO MORE BUDGET CUTS TO PROGRAMS AND SERVICES FOR DEVELOPMENTALLY/INTELLECTUALLY DISABLED CHILDREN AND ADULTS!! Thank you.
Just finished up a call with Rep. Tom Suozzi’s office. Spoke with one of his Assistants. Explained my concerns about the health care bill, the budget cuts and the need to increase staff, services and programs to the developmentally disabled persons residing at Queens Centers for Progress (QCP) ~~ Bellerose, Queens, New York. Suggested that Rep. Suozzi make a visit and get to know the residents who live there. Their needs, dreams, goals, desires. I cannot stand by and be apathetic when my brother Stephen’s life is on the line.

 

James 2:14-17

New King James Version (NKJV)

Faith Without Works Is Dead

14 What does it profit, my brethren, if someone says he has faith but does not have works? Can faith save him? 15 If a brother or sister is naked and destitute of daily food, 16 and one of you says to them, “Depart in peace, be warmed and filled,” but you do not give them the things which are needed for the body, what does it profit? 17 Thus also faith by itself, if it does not have works, is dead.

Throwback Thursday ~~ Vintage Family Photos


 

https://bopaula.wordpress.com/2017/07/13/thursdays-special-traces-of-the-past-y3-07/

Traces of the Past

 

Throwback Thursday ~~ Vintage Family Photos

A Pictorial Ode to Happier Times

Once Upon a Time When Innocence and Joy Reigned in Our Lives

 

 

Dads 1st car
Dad’s 1st car early 1950s. DeBorah Ann Palmer

 

Those I hope to see again in Heaven

 

Happier Times of Long Ago when Life was simpler and filled with Joy

Childhood when I was Happy, Healthy and the World was my Oyster

 

 

 

 

 

I’m Calling for Stephen! Who are you calling for?


 

 

This post pertains to my Followers/Subscribers in the USA.

 

Today July 12 for a National Disability Community Call-In Day to urge Senators to oppose the ACA repeal bill. The Senate is planning to vote NEXT WEEK — and with a bill this dangerous, we can’t let up until there’s no chance of it passing. That’s why we’re asking you to join this call-in day – to intensify our collective voices and tell the Senate to defend our right to health care.
 
I made my calls. Are you making yours? I called for my brother Stephen Palmer who does not have conversational speech. Stephen cannot speak for himself so I called for him.
 
I made Two (2) calls to Senator Chuck Schumer. Called Sen. Kirsten Gillibrand, Rep. Hakeem Jeffries , & Rep. Yvette Clarke.
 

I’m Calling for Stephen. Who are you calling for?

 

Medicaid and SSI are what pay for Stephen to be in his Group Home Residence and to receive health care.  Obviously I cannot pay for his health care when I’m barely able to take care of myself.  Americans Stand Up for those with Disabilities. Speak up for those who cannot speak for themselves!!

Below is a Copy and Paste from the Email ASAN sent me. For those of you in the USA please use your Zip Code to find the Congresspersons, Senators and Representatives for your District.  Thank you.

I’m Calling for Stephen. Who are you calling for?

ALSO NO MORE BUDGET CUTS TO PROGRAMS AND SERVICES FOR DEVELOPMENTALLY/INTELLECTUALLY DISABLED CHILDREN AND ADULTS!!

 

Asan

 
Join ASAN, July 12 for a National Disability Community Call-In Day to urge Senators to oppose the ACA repeal bill. The Senate is planning to vote NEXT WEEK — and with a bill this dangerous, we can’t let up until there’s no chance of it passing. That’s why we’re asking you to join this call-in day – to intensify our collective voices and tell the Senate to defend our right to health care.
 
Why call?
A single day when we all converge on the Senate’s telephone lines will show them just how big, determined, and relentless our community is. The disability community has a long history of organizing and fighting for our rights – and we need to show the Senate that we won’t stop.
 
Since postponing the vote, some Senators who’ve pledged to vote “yes” are using the extra time to try to bring more of the “no” votes over to their side. With all that backroom negotiating going on, we have to make sure our Senators know that no deal is good enough to justify taking our health care away.
 
Senators who oppose the bill need to hear from their constituents that they’re doing the right thing. Some Senators have pledged to vote “no” on the repeal bill, and that’s great! We need them to stand firm and keep working to convince their colleagues to oppose the bill.
 
How can I join?
Look up your Senators’ phone numbers by entering your ZIP code at contactingcongress.org. When you call, you’ll be speaking to one of the Senator’s staffers, not the Senator themselves.
 
If you want to call, but don’t want to talk to a staffer on the phone, you can call after work hours and leave a message on the answering machine. Your message will still be counted.
 
If you don’t speak, you can call using your AAC device, or get a friend to call in and read your message.
 
However you do it, we need your calls during tomorrow’s national call-in day.
 
Here’s a script you can use:
 
My name is [your full name]. I’m a constituent of Senator [Name], and I live in [your town]. I’m calling to ask the Senator to vote NO on repealing the Affordable Care Act. This bill would take health insurance away from 22 million Americans, and destroy Medicaid as we know it. Disabled people in our state would lose access to lifesaving health care and be forced into institutions – all to fund a massive tax break for the wealthiest Americans. People with disabilities like [me/ my family member/ my friends] are not disposable, and our Medicaid is not your trust fund. Please vote AGAINST repealing the Affordable Care Act. We’re counting on you to do the right thing.
 
Tomorrow’s national call-in will be thousands of voices with one message: Healthcare is a human right, not a privilege afforded only to a select few. Every single person that calls tomorrow will help amplify our message and make sure that the Senate hears us. We hope you’ll join us.
 
P.S. – Need help understanding what the ACA repeal does? You can read about how it would change the ACA and Medicaid in our plain-language toolkits.
 
AUTISTIC SELF ADVOCACY NETWORK © 2017
PO Box 66122, Washington, DC 20035

 

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Balancing the Budget on the Backs of Our Most Vulnerable Populations


 

This is an expanded post based statements I made on yesterday’s Share Your World.

Budget cuts for Our Most Vulnerable Populations

I Love and Enjoy attending Stephen’s meeting and seeing him. The news about all the layoffs and cutbacks due to lack of funding was depressing. Less and less services and programs for Stephen and the other residents.
The art program has been completely cut. Stephen enjoys art and making drawings, ceramics, etc…. He is no longer going out to as many work-sites because New York State has not provided funding to pay staff to take him to his job sites. Stephen used to attend a special camp for Adults with Autism but that got cut also. So you see my 3 days off was not relaxing in the least bit.
Developmentally Disabled citizens are being kicked to the curb because our American government no longer cares. Many professionals and family members are worried that this is a return to the warehousing of developmentally disabled people that was the norm in the 50s, 60s & 70s. Those of you old enough will remember Willowbrook and the scandal that reporter Geraldo Rivero exposed at that house of horrors.
When Geraldo Rivero went inside the Willowbrook facility he found resident rocking back and forth let in their own waste, feces, & urine. Residents were beaten by their often overworked, untrained supposed care-givers. So for those of you who criticise the Media TV Reporters think again. If it were not for investigative reporters hundreds if not thousands of Autism/Special Needs/Developmentally Disabled people would be crying out in pain. Crying into a void because nobody listens. So give your support to the Good and Reliable Media/TV Reporters. Often they are God’s Angels in disguise.
Keep in mind that staff who are overworked and underpaid often make mistakes. However these mistakes put disabled people at risk.
When our parents died I took up the mantle. Even before their deaths I was very much involved in caring for my brother Stephen. I still do my best but it is difficult for me to keep up with what is going on at his Residence and Training School. Especially since I work full-time. Plus I’m getting older. My body has aches, pains and disabilities now that I did not have 15 or 20 years ago. Even going up and down the subway stairs is a challenge. I get tired more easily and I’m starting to slow down.
My desire is to do more for Stephen but I don’t know how. I do call and email my elected officials because I cannot be with Stephen 24/7/365. Still I feel that guilt. Always asking God How can I be a better Sister to Stephen. Many days I’m at my wits end.
I wish I was rich and wealthy so I could donate money to hire more staff and return the arts, camps, work-site/work readiness programs that make the lives those with developmental disabilities fulfilling.
Not only will I be once again writing, calling and texting our elected officials I’m thinking of getting in touch with Caroline Kennedy, President John Kennedy’s daughter.  Those of you born and raised in the U.S.A. already know that President Kennedy’s Sister Rosemary Kennedy was born with developmental and intellectual disabilities probably due to a lack of oxygen to the brain during birth.  Most Americans are familiar with the Special Olympics begun by Ethel Kennedy.
Here is an old post of mine to give you more information regarding Rosemary Kennedy.
Stephen is a kind, compassion, loving, giving human being  who is always concerned for his fellow human beings. Sadly New York has a huge homeless populations.  At night homeless people sleep in cardboard boxes on the streets in all types of weather. Many live inside the subway stations that includes the platforms as well as inside the subway cars.
I remember one time while we were riding the subway a disabled homeless man began to cry. Stephen was about to get up out of his seat because he wanted so much to help this poor man.  If Stephen sees a blind or wheelchair person in distress he will go over to them. Stephen cannot stand to see other people suffer. His attitude is always, “I can help. Please let me help you.”  Stephen helps me tremendously when I’m feeling down and does so without judgment because being judgmental or critical of hurting people is a foreign concept to him. If an Autism Guy can give of himself to help others why can’t the American government do the same?  How can City, State and Federal elected officials continue to enact polices that put ALL Disabled populations at risk?

https://donatenow.networkforgood.org/aabr

https://dancingpalmtrees.com/2017/07/08/aabr-donation-opportunity/

http://www.queenscp.org/how-you-can-help/donations/

Remember that All Human Beings Have Value and worth. Everyone Deserves a Fulfilling, Happy and Joyful Life no matter their disability.  An opportunity to fulfill their passions and purpose. A chance to express their creativity. We must speak up for those who cannot speak for themselves.

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Share Your World – July 10, 2017


 

Share Your World – July 10, 2017

Share Your World – July 10, 2017

share-your-world-syw

How do you like to spend a rainy day?

Inside. Rain is bad for my arthritis. Creates more pain. If it rains on a work day or if I have a meeting to attend then I just grin and bare the pain and pass out when I get home. Joint pain is no fun so rain is not my friend.

List at least five favorite treats. (They do not have to be sugary).

Plantain chips

Blueberry muffins

Egg and American cheese on a cinnamon raisin bagel

Italian ices

Yogurt

Where’s your favorite place to take out-of-town guests?

I never have out of town guests but I remember when I was a young girl and my family from Ohio came to New York either my Dad or myself would take them to the famous New York sites. Empire State building and all those touristy places I don’t like. I suppose if someone were to visit me and I had the vacation time to spend with them we’d be going to all the New York Museums which I can get in for Free since I am employed by a NY Museum.

You are trapped in an elevator, who would you want to be trapped with?

That’s something I don’t even want to entertain since it has happened on my job. Not to me but to my co-workers. I have a fear of enclosed places with no escape which is bad because one of my duties when there is a special exhibition opening is to operate the elevator. I know my bosses can see me pacing back and forth inside the elevator. Scary. Ugh. This scenario is a Trigger for my nerves. Reminds me of when I was trapped underground in the subway for over an hour last Jan when the train hit a guy on the tracks. Suicide victim. Horrible.

Given that I have high blood pressure, anxiety and panic attacks I’d pick Jesus because only Jesus could get the elevators to work or take me to Heaven in case I have a heart attack or stroke.

Optional Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I got to see Stephen. I had planned for a relaxing three 3 day weekend but that did not happen.  The only good part was attending Stephen’s meeting and seeing him. The news about all the layoffs and cutbacks due to lack of funding was depressing. Less and less services and programs for Stephen and the other residents.

The art program has been completely cut.  Stephen enjoys art and making drawings, ceramics, etc….  He is no longer going out to as many work-sites because New York State has not provided funding to pay staff to take him to his job sites.  Stephen used to attend a special camp for Adults with Autism but that got cut also. So you see my 3 days off was not relaxing in the least bit.

Developmentally Disabled citizens are being kicked to the curb because our American government no longer cares. Many professionals and family members are worried that this is a return to the warehousing of developmentally disabled people that was the norm in the 50s, 60s & 70s.  Those of you old enough will remember Willowbrook and the scandal that reporter Geraldo Rivero exposed at that house of horrors.

I wish I was rich and wealthy so I could donate money to hire more staff and return the arts, camps, work-site/work readiness programs that make the lives those with developmental disabilities fulfilling.