Watch “Sisters and Soulmates” on YouTube


 

My number one goal in life is to be a good sister to Stephen. 

My brother Stephen is my Soul mate. Every time we are together or when I speak to Stephen over the phone I tell him I Love him.  

Stephen Palmer I promise that as long as God gives me strength I will Never Leave your side. We are Life Partners.  Like the Sisters in the video we are totally Devoted to each other.

 

 

Share Your World – July 10, 2017


 

Share Your World – July 10, 2017

Share Your World – July 10, 2017

share-your-world-syw

How do you like to spend a rainy day?

Inside. Rain is bad for my arthritis. Creates more pain. If it rains on a work day or if I have a meeting to attend then I just grin and bare the pain and pass out when I get home. Joint pain is no fun so rain is not my friend.

List at least five favorite treats. (They do not have to be sugary).

Plantain chips

Blueberry muffins

Egg and American cheese on a cinnamon raisin bagel

Italian ices

Yogurt

Where’s your favorite place to take out-of-town guests?

I never have out of town guests but I remember when I was a young girl and my family from Ohio came to New York either my Dad or myself would take them to the famous New York sites. Empire State building and all those touristy places I don’t like. I suppose if someone were to visit me and I had the vacation time to spend with them we’d be going to all the New York Museums which I can get in for Free since I am employed by a NY Museum.

You are trapped in an elevator, who would you want to be trapped with?

That’s something I don’t even want to entertain since it has happened on my job. Not to me but to my co-workers. I have a fear of enclosed places with no escape which is bad because one of my duties when there is a special exhibition opening is to operate the elevator. I know my bosses can see me pacing back and forth inside the elevator. Scary. Ugh. This scenario is a Trigger for my nerves. Reminds me of when I was trapped underground in the subway for over an hour last Jan when the train hit a guy on the tracks. Suicide victim. Horrible.

Given that I have high blood pressure, anxiety and panic attacks I’d pick Jesus because only Jesus could get the elevators to work or take me to Heaven in case I have a heart attack or stroke.

Optional Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I got to see Stephen. I had planned for a relaxing three 3 day weekend but that did not happen.  The only good part was attending Stephen’s meeting and seeing him. The news about all the layoffs and cutbacks due to lack of funding was depressing. Less and less services and programs for Stephen and the other residents.

The art program has been completely cut.  Stephen enjoys art and making drawings, ceramics, etc….  He is no longer going out to as many work-sites because New York State has not provided funding to pay staff to take him to his job sites.  Stephen used to attend a special camp for Adults with Autism but that got cut also. So you see my 3 days off was not relaxing in the least bit.

Developmentally Disabled citizens are being kicked to the curb because our American government no longer cares. Many professionals and family members are worried that this is a return to the warehousing of developmentally disabled people that was the norm in the 50s, 60s & 70s.  Those of you old enough will remember Willowbrook and the scandal that reporter Geraldo Rivero exposed at that house of horrors.

I wish I was rich and wealthy so I could donate money to hire more staff and return the arts, camps, work-site/work readiness programs that make the lives those with developmental disabilities fulfilling.

 

 

Sibling Stories


 

 

Sibling Stories

This is the first of what I hope will be many Sibling Stories about the siblings of developmentally disabled adults. The siblings are often overlooked and there does not seem to be much in the way of programs or services that address the needs of siblings so I’ve decided to do some blog posts to highlight the lives of siblings. Our needs, hopes, dreams, goals and desires. We are multi-faceted and multi-dimensional.

The first in this series is my buddy and former co-worker Mr. Harvey Lackey. I had the pleasure of working with Harvey for four years. He is a young man filled with joy, happiness and a quick wit.

Please enjoy and give his music a listen.

Also please remember my Theme Song Jingle!!

Don’t hate! Communicate!! Collaborate!! Listen to your Heart and Donate!!  To Agencies and Organizations that provide support services and programs to Developmentally Disabled persons!! Thanks!!

Harvey’s Story

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Living with an developmentally disabled sister is a job and work in progress. You always have to keep one eye open to keep her safe. Conversation wise is not easy on my part, because she is limited in some ways with conversation & i’m not really a talkative person and i’m constantly busy. Living with 2 other older sisters & mother makes it easier to deal with. She influences my music a in some ways and she loves listening to the radio a lot in her free time. She was under care at a program called AMAC and currently under a program called IAHD.
Bio:
Ras (X) is a producer/MC/Underground Indie Artist & was born in New York & raised in the Bronx. He loves hip hop, & has been a fan since the ’90s as a kid growing up. The artist’s and songs that really got him wanting to produce & MC was 2Pac, Nore’s “Banned From TV” & Canibus. After hearing 2Pac’s All Eyez On Me, he thought, I have 2 try 2 write sum lyrics. He would spend hours writing rhymes & trying 2 imitate various rappers flows & lyrics. Also, he is a huge fan of that mid ’90s-early ’00s sound. He try’s 2 get his music 2 sound like that era in the best possible way. He is a workaholic, & spends as much time possible making beats & just trying to stay on top of his game. The moniker “Ras (X)” comes from his middle name Rashid, shortened to just Ras & the (X) is unknown, meaning it could mean anything, such as Ras (X)-Cellent, Ras (X)-Man, Ras (X)-Troadinaire & so on.
Ras (X) loves the process of making music. It can stem from mood, experience, everyday situations or short notice ideas. In other words, it’s very sporadic. Hearing the finished product is what drives Ras (X).
Production Credits: Aye Nyce, BillzZz, Da NaughtY, Jerms Black, D-Will, Larry Bondz, Mic Bookz, Epik, IRA, Joey Jesus, Kapi-Ku, Soe Sykk, Just Biz, Sun Zee & more
To reach Ras (X), email him at:
Check me out on FIYA and be sure download the FIYA app from the store on ur tablet or phone:
OR
Instagram:
Twitter:
Facebook:
(X)-Clusive Interview wit da Ras here:
*4 albums, music videos & beats checkout:
Datpiff:
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Blessed are the Pure in Heart


 

https://dailypost.wordpress.com/photo-challenges/pure/#like-245235

Pure

For this week’s challenge, share a photo of something pure — it can be a person, an object, or a moment.

Matthew 5:8

King James Version (KJV)

Blessed are the pure in heart: for they shall see God.

My brother Stephen an Autism Guy who is truly Pure in Heart, Soul and Spirit.  Always kind, considerate, compassionate and Loving. God Lives in and Through Him in All Stephen’s thoughts and Actions.

 

 

 

 

Prompt Stomp ~~ Super Heroes


 

https://themomhood.wordpress.com/2016/01/02/prompt-stomp-week-13-welcome-2016/comment-page-1/#comment-2133

 

“…I love dressing up in superhero outfits and in fact, when I dress up as Wonder Woman, I actually think that I’m more powerful…”

—Olivia Munn

Real or made up. A super hero can be anybody. The lady next door who devotes her time to the needy, our soldiers across the seas or like our heroes growing up we can write about Batman or Wonder Woman. A super hero can take many forms. Lets write about them this week!

 

Every Halloween my brother Stephen and I become Super Heroes. Halloween is my favorite holiday because you can not only dress in costume but it’s okay to walk around the city in that costume with your new though temporary Identity. For a long time I went with a feline theme thus I was Cat Woman channeling Eartha Kitt for several Halloweens.  As you can see I greatly enjoyed my Cat Woman and Tigeress Avatars!  Stephen won Best Costume in 2011 for his Scarecrow Costume!!  in 2013/2014 Stephen was a Sailor aka like the kid on the Cracker Jack box for those of you old enough to remember the caramel popcorn with the toy surprise. Obviously for those of you living on the East Coast of the United States Hurricane Sandy put the kibosh on Halloween that year. Some photos were taken at Stephen’s training center AABR in Jamaica, Queens, New York.

Sailor Stephen
Sailor Stephen

Stephen the Happy Sailor Stephen Sails the Seas Stephen Sails the Oceans

Sailor Stephen
Sailor Stephen
Stephen as Scarecrow
Stephen as Scarecrow
Ebony Panther
Ebony Panther

Black Panther2

Me as the Black Panther
Me as the Black Panther
Stephen as Scarecrow. Me as Cat Woman.
Stephen as Scarecrow. Me as Cat Woman.
Year of the Tiger!
Halloween 2013 ~ Year of the Tiger!!
Me channeling Cat Woman Halloween 2011
Me channeling Cat Woman Halloween 2011

 

My Avatar ~ Cat Woman
My Avatar ~ Cat Woman

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

This past summer Stephen with his Group Home residence had visited The New York Renaissance Faire located in Tuxedo, New York. So together we decided on variations of a Renaissance Theme. I re-imagined Diana the Huntress as DeBorah the Huntress, a combination of the Hunger Games and the Goddess Diana. So I become the Goddess DeBorah acting out my incarnation as Huntress Protector of the Forest.  Stephen transformed from a Sailor into the Black Robin Hood! This is what ensued.

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Stephen as Robin Hood October 30, 2015
Stephen as Robin Hood October 30, 2015

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Stephen as the Black Robin Hood!
Stephen as Robin Hood!